Monday, August 31, 2009

Thank you everyone!

I would like to thank those that helped me yesterday at the XC race in Maine. I had a petite mall seizure on the first lap and did not slow down enough to ride all the way through it. When we hit the second lap, it started to come back and I tried to ride through it on the climb....oops.

This goes out to the officials and all the riders that helped as I was attempting to trot back to officials and walking into trees.
Spent a few hours in the hospital, earned a big headache and guess that was payback for pushing it so hard while on chemo.

I head into Sloan Kettering tomorrow for an update and this may speed up some new treatment.

Thanks again to everyone for their help, if I had any memory left, I'd thank you all by name. :)


Tuesday, August 18, 2009

Still here

Hey everyone,

I apologize for not posting in quite a while, must admit this summer has been boring with all the new chemo I was on.

Amazing how I thought that riding/racing would be no problem, however, finishing an average of 30-40 minutes behind guys I hung with last season made competing not much fun. Stopped racing for a bit and I've just ridden for fun which is pretty awesome! Done a few NEMBA rides along with locals, think my Superfly has gotten more exposure at those big rides than it may get at some race events.

The first round of Carmustine/BiCNU shrank tumor a lot, I was at Sloan again on 8/4/09 and it is growing again so we changed treatment. Back on Temodar just a different way, 80 mg a day for six months as opposed to the 250 a day for 5 days once a month.

Going to add Avastin next month, incredible new drug that shrinks brain tumors and keeps them from growing anymore. I'll be test rat but having seen how well it works and its approval for other tumors it will be great opportunity. Just cannot crash while on it as it thins blood, hate to knock off the tumor only to sh** the bed due to a bad singletrack move (you can laugh, that was a joke).

So any rate, I've felt better since being off the other stuff and will race again this weekend @ the EFTA Treasure Valley Rally. That should be interesting as I have no legs but hope to get them back for cyclocross season.

So that covers it all if I babbled and repeated from last post I apologize.

Take care,